Orientation to Research with Human Subjects
Informed Consent
Participant Bill of Rights
Many institutions have developed human subjects "bill of rights" documents. Among the rights included on such documents that have not already been mentioned earlier in this orientation, are the following:
- Access to objective information about the research and subject obligations
- Access to objective information about subject rights
- The freedom to withdraw from the research without any negative consequences at any time at which it is physically and
medically safe to do so
- The right to productive use of one's time when not participating in the research
- Confidentiality of records of participation, except as clearly deliniated otherwise
- The right to an informative debriefing
Persons who commit themselves to participation as human subjects of research do so for a variety of reasons and under many different kinds of motivations. No human subject waives or should be given any reason to believe they have waived any rights of redress or recourse related to the consequences of the research.
